Welcome to Living with Cancer. This space is dedicated to sharing the raw, honest truth about what it’s truly like to live with a cancer diagnosis. We explore the daily challenges that treatment brings, the uncertainty of whether it's working, and the vigilance required in finding secondary cancers before the primary. Join us as we navigate this journey together, understanding how it affects you and your family, and finding strength in shared experiences.
Today has been a good day to say it's Friday. I have had my reflexology and reiki session with be will with Rachel, followed by a card reading, very interesting reading today telling me to do things I want to to do not what pleases others, don't try to please others look after myself. Then cuddles on the sofa with my stuffy dog bear, he just loves cuddle, now to get my broccoli and cheddar soup for lunch and see what the rest of the day brings. Keep fighting everyone.
I am a 57 year old widow living with triple negative bilateral breast cancer stage 4 none curable. I went to the doctors in September of 2024with a lump in my neck,an enlarged lymph node. After blood tests ct scan ultra sound biopsy and chest X-ray I heard nothing for weeks. I started chasing results after 6 weeks to find know one knew where my results had gone. I eventually was called to an orthopaedic appointment and although I really shouldn't have been there the consultant after 4 hours of searching came into the room to notify me that I had a cancer of unknown primary, it was in the medial sternum and left lymph node in my left arm pit. He asked me to go for bloods and oncology would contact me within 2 weeks. After 3 weeks I rang oncology to find I hadn't been given an appointment, they arranged one for 2 days later. I took my mum and daughter with me, I met with the oncologist who was exceptionally rude, she told me what I had already been told then went on to say she wouldn't treat me as I had 3 months to live. I told her this wasn't an option and I would be treated. My mum and daughter were devastated. Once home I complained to pals and made a formal complaint about the way I had been treated. I got a reply and treatment was given the go ahead. I had 15 sessions of radiotherapy to chest and neck in January 2025 . I then had to wait until march for a scan and April for results to be told the chest was now clear. What they didn't mention was the large lump in my left breast and the 3 smaller lumps in the right breast and abdomen. I rang and rang and got old case going to mdt week after week. Eventually I rang the breast clinic and demanded àn appointment in the tri clinic, I had this on may 8 2024. The doctor and saw was absolutely disgusted that I hadn't been referred before. He examined me, I had a mammogram I had ultra sound and 10 biopsies and then he confirmed it was breast cancer and he needed the biopsy results to determine which type. In June of 2024 I met with my new oncologist to be told I had bilateral triple negative breast cancer with secondaries in the upper abdomen. The cancers which had been treated by radiation we're secondary to this breast cancer. The cancers which is none curable as it's spread, I'm on continuous palliative treatment to slow progression.
Living with Cancer began as a personal mission to shed light on an often misunderstood experience. This blog is a platform for authentic stories, discussing the day-to-day realities, the anxiety surrounding treatment efficacy, and the profound impact on mental and physical wellbeing. We aim to foster understanding and provide a space where you and your family can feel seen, heard, and supported through every step of this challenging path.
Today has been a good day to say it's Friday. I have had my reflexology and reiki session with be will with Rachel, followed by a card reading, very interesting reading today telling me to do things I want to to do not what pleases others, don't try to please others look after myself. Then cuddles on the sofa with my stuffy dog bear, he just loves cuddle, now to get my broccoli and cheddar soup for lunch and see what the rest of the day brings. Keep fighting everyone.
I am a 57 year old widow living with triple negative bilateral breast cancer stage 4 none curable. I went to the doctors in September of 2024with a lump in my neck,an enlarged lymph node. After blood tests ct scan ultra sound biopsy and chest X-ray I heard nothing for weeks. I started chasing results after 6 weeks to find know one knew where my results had gone. I eventually was called to an orthopaedic appointment and although I really shouldn't have been there the consultant after 4 hours of searching came into the room to notify me that I had a cancer of unknown primary, it was in the medial sternum and left lymph node in my left arm pit. He asked me to go for bloods and oncology would contact me within 2 weeks. After 3 weeks I rang oncology to find I hadn't been given an appointment, they arranged one for 2 days later. I took my mum and daughter with me, I met with the oncologist who was exceptionally rude, she told me what I had already been told then went on to say she wouldn't treat me as I had 3 months to live. I told her this wasn't an option and I would be treated. My mum and daughter were devastated. Once home I complained to pals and made a formal complaint about the way I had been treated. I got a reply and treatment was given the go ahead. I had 15 sessions of radiotherapy to chest and neck in January 2025 . I then had to wait until march for a scan and April for results to be told the chest was now clear. What they didn't mention was the large lump in my left breast and the 3 smaller lumps in the right breast and abdomen. I rang and rang and got old case going to mdt week after week. Eventually I rang the breast clinic and demanded àn appointment in the tri clinic, I had this on may 8 2024. The doctor and saw was absolutely disgusted that I hadn't been referred before. He examined me, I had a mammogram I had ultra sound and 10 biopsies and then he confirmed it was breast cancer and he needed the biopsy results to determine which type. In June of 2024 I met with my new oncologist to be told I had bilateral triple negative breast cancer with secondaries in the upper abdomen. The cancers which had been treated by radiation we're secondary to this breast cancer. The cancers which is none curable as it's spread, I'm on continuous palliative treatment to slow progression.
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